2 Days Later...

... and quite frankly, a bit stressed and anxious over this process. The meds and the DBS are working against each other a bit. He has terrible dyskenisas - don't know the medical definition, but think of it this way - your leg is attached to your body, but you have NO control over it. It has a mind of his own to the point where if he is over medicated and "charged", it is like his leg is a kite string on a windy day. It literally takes off and does its own thing. Obviously, making walking, sitting still, and lying down virtually impossible. It was so bad on the way home from the hospital that we had to turn off the DBS altogether. He is currently -17 clicks from the original programming.

Tim spoke to the doctor yesterday and told him to stop 2 of the 3 medications he has been on. So, the good news is now he is down to 1.5 pills a day - down from I think around 14. We are documenting the reaction of the meds and what "speed" the DBS is set to so when he goes for reprogramming in January, they will have actual data to work with. We have to experiment now.

So, the good news - speech is louder, stronger, and clearer; his beautiful face/smile/expressions are back and he is as gorgeous as ever; the right side of his body is completely "fixed". Absolutely no tremor in that right leg!!!

Working to improve - Left hand/arm tremor; and him just feeling good.

He thinks he may be coming down with a cold now too and he is still healing from surgery, so, I think in a week's time or so, things will regulate more. I do think he is feeling better...

His brothers Chris and Mike showed up in the middle of the night as a surprise to Tim. When Tim woke up this morning and saw them, he was pretty darn happy. They have been out shopping for the past 4 hours. So, I hope this is the first real step in his recovery!

The kids are good. They don't see daddy all fixed yet so they think the surgeries were a waste of time. We told them it could take up to a year to get this all situated and they are not happy about that. This will be a life lesson we teach to them that will stick to their little bones for the rest of their lives - PATIENCE - now, if only Tim and I can walk the talk, we'll be golden!

Happy rest of your weekend. Love to all...